Sunday, April 25, 2010

Reflective post!

In the past few months, Presley had made really great progress! I can believe how well she is speaking; putting together three word “sentences!” She’s so smart! I’m so proud of the progress she’s made and I’m looking forward to the future, because I know she’s only going to get stronger.

Since I’ve been doing my research in this blog, I’ve learned a great deal about different therapies, treatments and medical diagnoses. There’s so much great information out there and it’s all at my finger tips. I’ll never have the time to read it all, but I can try. Researching has lead to some unexpected surprises, as well as common knowledge. Being able to use the internet, instead of traditional research sources (such as, library databases) has expanded the information one is able to obtain. There are specific groups and organizations that specialize in research on Sensory Processing Disorder; they are a wealth of knowledge. I’m grateful for this project, because it has helped me learn even more about my daughter and helped me view things through her eyes.

I’ll continue writing in this blog, keeping everyone updated with Presley’s progress and anything new that may come up.

Again, I’m glad that she is making such great progress and I’m looking forward to the years to come!

Wednesday, April 21, 2010

A Mother's Courage: Talking back to Autism

Presley went in for a well check-up with her Pediatrician, last week. He brought up testing her for autism, again. He thinks that she has many characteristics and shows signs that of a child on the spectrum. I agree, however, both times she was tested she received the “it’s too early to tell” diagnoses. So we’ll try when she turns four. I’m certain, her Pediatrician is certain and most people who are familiar with Autism are certain.

Last week a watched a documentary on HBO called A mother’s courage: talking back to autism. It was fantastic. The Mother in the movie, from Iceland, has a son who is severely Autistic. He’s doesn’t have the verbal skills, to communicate. I was so impressed with this documentary!
-They showed a boy being tested, who is Presley’s age, who was way more “functional” then Presley and the boy got the diagnoses of Autism.
-They showed a woman, Soma Mukhophadhyay, who found a brilliant way to help people with Autism communicate. She does different stimulating activities and these children who, people though couldn’t communicate, spelled out various words! It was amazing to see them communicate!

From a press release on the website, to sum up the movie: “The film follows Margret Dagmar Ericsdottir, an Icelandic mother, and her severely autistic 10-year-old son as they travel to the U.S. to research new therapies in the hopes of unlocking the autistic mind. Over the course of her journey, she finds a glimmer of hope that her son may be able to communicate on a level she never expected.” The movie is spreading awareness of this autism epidemic, and giving parents with children on the spectrum a new perspective, as well as a glimpse of new therapies to try.

Which brings me back to having Presley tested, again. It gave me a positive outlook on the whole “Autism” issue, a new understand and “hope.” If she has it, I have all these new resources to try out and I know there are other mothers out there who feel the same way.

I really think everyone should see it.

For more information, please check out: