Sunday, February 22, 2009

First words!

Presley now calls me momma and her father, daddy! I know everyone says its awesome to hear your child call you 'momma' or 'daddy' but i think its way more awesome for me to hear it. I've been waiting for so long. To get our attention she calls us by name and shows us things.

Speaking of words, shes really into saying numbers, letters and colors now. She can properly identify yellow, red, purple, black (her favorite) and pink. She points out the color black everywhere, including our dog. I would say she now has at least 25-30 words and again, i never thought i see the day!

Wednesday, February 4, 2009

Updates.

We got our packet in the mail for the Autism testing about a week ago. I've finally managed to get everything together and answer all they're packets. I got one of Presleys therpist to go over all the paperwork to make sure i checked everything off right. I've also managed to get all the copys of previous testings, MRI, Feeding clinic, Previous Autism testing, Sensory profiles and load of Early intervention stuff. The packet i'm mailing them back is at least two inches thick. I think i'm also going to put a note in there about this blog so they can at least view some of the videos.

I'm happy to report that Presley is using more words. We cant get her to say them again, but it still interesting her hear her say things, even it if it's once. For instance she's said "hawK" and "deeR" and during a therapy session, when Auntie Jessica was here she counted to nine! NINE! Thats such a huge deal and i'm so proud of her. Now when she gets angry she counts to three.

With a bit of back and fourth i've managed to get her a weighted vest and swing through insurence/early intervention. I've picked out a taco swing because she digs deep pressure. Its basically like a hammock, she can lay in and swing. The weighted vest is just like it sounds and has the same deep pressure affect and keeps her centered.

Brittons mother, who runs an in home daycare reported that Presley has been interacting more with the other kids. His mom says that she's noticed a big difference in her when it comes to interacting with the other kids.

I'm so proud of my little squirt!

Sunday, December 28, 2008

Christmas 2008

Photobucket Album
I just heard about this movie that came out, called Autisitc-like: Graham's story which I really want to see. Of course, Netflix doesnt have it yet--so i guess i'd have to buy a copy. Its about Sensory processing disorder.

You know, the more time that goes by the more i think its just the SPD, maybe not Autism. I'm so torn, because, hello, i'm no doctor, but i see all these signs...then somedays i just see a normal kid with a speech delay.

I guess we'll just have to wait and see what the doctors think. March. March 5th. Just a three more months.

Monday, November 24, 2008

Feeding

I would just like to vent my frustration.
The feeding clinic gave us a run-down on things we should be doing when we feed Presley. I already give her praise when she takes a "bite" (and by "bite" I mean actually taking a spoon full of liquid baby food), I try to do mouthing exercises (trying to get her to mimic chewing...I use a yo gabba gabba song that goes 'bite bite bite, chomp chomp chomp). BUT these "tools" they gave us suck. I'm sure they work and I’m sure eventually she'll get use to them but I just want to share them with you.

First up we have the "probe"
Ark's probe


Its use to stimulate the tongue. It blows. Not only does it have a suggestive name, it’s tiny and easy to shove down your kid’s throat. Especially when she’s jerking her head all around to get the weird thing out of her mouth. They say "gently tap it on her tongue three times" RIGHT. She’s screaming, biting on it, shaking her head back and fourth.


Next we have the "grabber"
arks grabber

I've got Presley to bite on this one time. We use the long end, to place on the side of her mouth and get her chomp down for three seconds. It’s pretty much the same as the "probe" she’s screaming, shaking her head back and fourth and shakes at the SIGHT of It.


And finally we have the "Tri-chew"
TRI-CHEW

This one I like, it has small knobby ends that are easy to get into the side of her mouth. However, the feeding clinic was out of them (to give us anyway) so I had to order ours, which is still not here.


So those are some feeding "tools" they all look so weird. If I didn’t have a child with these issues I’d think they we're sex toys or something.